get married
The application of the compulsory medical examination for those intending to marry has received great support from the Saudi street, to eliminate hereditary blood diseases, as there is a large proportion infected or carrying this disease, but some believe that the method of implementing the decision was not appropriate, and that this issue was raised in it. A lot of negative exaggeration, knowing that these diseases are not new, but have existed since the existence of man, and they are among the things that previous generations have inherited to the current generation. Early diagnosis Dr. Sheikha Al-Areedh (Head of the Department of Genetic Diseases at Salmaniya Hospital in the Kingdom of Bahrain) confirms that early diagnosis is very important, and it is useful to know whether the child is sick, pregnant, sick or healthy. And understanding the disease, its symptoms, and the problems that result from it .. And Al-Arrayed adds: It is also important to pay attention to medical, health and psychological care for the patient, which enables him to live a normal life and relieve his pain. It originates from Africa and Asia, and Dr. Al-Areed indicates that there are theories of the source of the disease in the world, and that the source of the disease in the Arabian Peninsula goes back to two sources, the first is the genetic factor. An African source, and it spreads in the western regions of the Kingdom, and an Asian source, and it spreads in the eastern regions of the Kingdom. Media coverage Dr. Abdullah Al-Rashed (specialist esoteric) believes that media dealing with this sensitive issue by highlighting it intensely is a positive thing and a humanitarian and national demand, although it was too late. However, he made a big mistake when he portrayed the injured and those carrying the disease in the form of frightening ghosts, with a hopeless condition, and that the injured person carries inside him an unwanted ghost, and that he should be wary of it and avoided .. which caused a great reaction among the injured and the carriers, as if they were people who are not They are normal and undesirable, or they should cease to exist, and the media contributed to negatively amplifying the situation for most people, when the patient or the carrier of the disease was portrayed as a great danger to society. Al-Rashed confirms: This case has contributed to forming a psychological barrier between the patient and the carrier of the disease and the healthy, and a view of fear and pain ... that was not previously present, although the media is required to shed light on this suffering in a more humane and more civilized manner, and to search for ways and ways to reach To a successful treatment, and urging the responsible governmental and civil authorities to increase interest in these diseases, by establishing qualified institutes and laboratories with equipment and cadres, and to bring in the best scientists in this field, and from all countries of the world, because this topic concerns human life and the life of the citizen, as well as raising the level of social awareness and raising morale Injured. Patient''s rights Dr.Abdullah Al-Nasser (consultant in internal medicine and hereditary blood diseases) says: This disease, as it is known, is transmitted by heredity, and the injured has no sin or offense in his heavy and painful pregnancy, which is felt only by those who are infected with it, or if it is afflicted by a loved one. It is a big mistake to hold this patient responsible, or to hold him beyond his capacity, and to deprive him of many of his rights. Dr. Al-Nasser focuses on the right to health, he says: The patient with this disease needs a lot of attention and care and health care, by finding hospitals, institutes and laboratories equipped with the best equipment, equipment and medical personnel specialized in the field of controlling and treating genetic blood, as the existing is not at the required level, according to the real need, and attention is also given. By the various visual, print and audio awareness. As for the second right that the Nasser sees, it is the psychological right, he says: dealing with the injured as an important member of society, encouraging him to practice his normal life, instilling confidence and reassurance in his psyche, and conveying the idea that this disease is like other diseases spread in society, and many people are infected with it. And he must be courageous in facing life naturally. The third right, from Al-Nasser’s point of view, is the right to study and work. He says: It is the right of the injured to study and work, and the officials must deal with those affected by these diseases with awareness, concern and great appreciation for their condition, and encourage them to continue studying and work, and find activities that suit the injured and the most, and the responsible for Work is to estimate the conditions of the casualty. A frightening ghost. Engineer Sadiq Ramadan (a businessman and social activist) believes that it is a big mistake to portray this disease as a frightening ghost, and that whoever carries this disease is a non-normal person, because he carries a frightening ghost, this disease is spread in most families, and portrayed in this frightening negative image It contradicts the effective treatment method, and that the use of the method of exposing the patient with the disease through analysis, after the ill-considered media campaign has great and dangerous negative effects, and it is a fatal mistake to apply the compulsory analysis system for married couples, Without carrying out an educational campaign at the level of all classes of society, through all media, as well as through seminars and visits to neighborhoods, and distributing leaflets to every home, and it is better not to resort to using the method of binding and preventing, but what is required is to first communicate awareness, and this is enough to make society take the appropriate decision. Al-Saeb. Treatment is in stages, and Dr. Ibrahim Al-Shabith says: Every problem must be studied in detail before application. It is true that there is great suffering that patients feel, but the problem should not be addressed with other, larger problems. Our society is a conservative society, and it is family-bound, and it is very difficult to prevent inbreeding in this way. Uncivilized, and the problem should be treated through specific and studied stages of time, and finding aids, equipped hospitals and qualified cadres, not only specialized in the field of genetic blood, but from all psychological, social and other specialties. Dr. Al-Shabith stresses the importance of benefiting from the experiences of other countries that were able to eliminate these diseases, such as Cyprus, Greece and Turkey, and it is not a shame to seek the help of experts from these countries. The most important thing before the examination is Dr. Badr Ali Al-Mustafa (consultant and member of the team preparing the first draft of the guide to ethical advice and guidance related to hereditary diseases) issued by the World Health Organization for the Eastern Mediterranean - April 2000, a supervisor and practitioner in the premarital counseling and counseling clinic at the Primary Health Care Center in Qatif) confirms that Examination does not make it necessary for one to marry or not. Rather, it provides information to those wishing to marry, about the health status of the other party, and from the angle of the disease, the field of research and examination (here it is only hereditary hemoglobin diseases), and they may marry the other party or not. The seriousness of the examination and Dr. Al-Mustafa believes that the danger of the examination lies in several angles: The first: There are several diseases that may be more common, and have an impact on the lives of the spouses and their children in the future, including the organic and psychological, and have roots, either hereditary or infectious, such as depression, obesity, viral hepatitis, diabetes, and others. a lot. So why only hemoglobin diseases? Can everything be tested? What is the best and most important thing to start with? The second: Donating information is not enough, as those wishing to marry need advice, guidance and direction on how to make a decision, and assume responsibility for it in the future. This matter is more important and effective than the examination itself. Third: Some people may, after examining, take some unfair decisions against themselves and others, including reluctance to marry or divorce, and the psychological or family problems that may entail. The patient or the carrier of the disease can marry the affected woman, and they can live a happy life, if they decide not to have children or rationing, for fear of having children affected, especially after preparing them psychologically, cognitively, and perhaps financially, to accept an injured child who is being cared for by appropriate care. The most important thing that must be met before the examination is the availability of health and psychological counseling and counseling centers or clinics that prepare and accommodate the examination step and the potential problems that will follow. Preventing marriage is a wrong decision. Engineer Abdullah Al-Shayeb (an architect and activist in the Association for Combating Genetic Blood Diseases) says: Preventing the marriage of the infected patient is an ill-considered decision from all directions.
And he wonders: Who said that disease (hereditary blood) prevents marriage? Adding: The decision to prevent marriage from infected people and disease carriers will deprive hundreds, especially women, of their natural right to marry, because the young man, in light of male customs, traditions, mentality and selfishness, will search for an uninfected and non-disease carrier, even if he is not infected and not carrying the disease, as a result of a shortage Awareness and culture, and in light of fear of the possibility of having children carrying the disease or infected, as portrayed by the media, and this prevention will lead to the accumulation of a group of women in society who are unmarried, and to the spread of immoral cases, and the truth is that the infected or the carrier of the disease can marry the infected woman, Knowing that injury to children is not inevitable, but relative, but it is possible to conceive healthy children, using modern scientific methods, including genetic engineering, and through IVF. Examination during pregnancy and confirms d. Sheikha Al-Arrayed that it is possible to discover whether the fetus will be healthy or the carrier of the disease or sick, by conducting the examination during pregnancy: by taking a sample of the amniotic fluid that surrounds the fetus after the third to fourth month and examining it carefully (gene test) to see if the genes are healthy In the fetus or not. And also examining part of the placenta at week (8-10) and doing a genetic test. Laziness and lethargy, Dr. Abdullah Al-Jarouf (consultant general surgery) confirms that this disease leads to the perception of the patient that he is a bad person, or an abnormal person, or a non-productive person, but they work actively and lively, and live in a normal state, with all the pain they suffer. It is painful to portray the patient as a helpless person, dependent on society, and that the officials and the people of the country should help them find suitable jobs for their condition. The fall of families, Engineer Abdulaziz Al-Naim says: The implementation of the decision in this way contributed to the destruction of many families in the community, which is characterized by conservatism. Forcing the woman to examine and then decide, a marriage occurs or not, will contribute to the destruction of the girl and the family, because once only one person advances a girl And the discovery of the presence of the disease
